Advocacy
This page is dedicated to those who are fighting for neurodegeneration through politics. Read more about different bills and advocacy groups and what they do, and even how you can get involved!
The Centers for Medicare and Medicaid (CMS) have greatly overlooked the needs of people with Alzheimer’s. Most treatments are not covered by medicare, and it is very therefore very difficult to get them. Recently, CMS made the decision to block coverage of FDA-approved treatments targeting amyloid for Alzheimer’s. Join us in asking Congress to call on CMS to change this decision. Send a message to your representative now.
SAGE is an advocacy group for LGBTQ+ elders. It works to mobilize LGBTQ+ people and allies to fight for their rights, as well as educating politicians and policymakers on LGBTQ+ aging issues. There are many ways to get involved in their movement, from volunteer work to writing letters to your local representatives. Learn more on their website!
The National Alzheimer's Project Act (NAPA) was originally signed in 2011 to help address underrepresented populations and health disparities among them. The Reauthorization Act will extend it into 2035. This bill supports federal planning and programs to address Alzheimer's and other dementia, as well as promoting healthy aging and risk reducing factors.